Start to Blog again

It was just yesterday when I was crying in buckets, reading all online research and articles about systemic Juvenile Idiopathic Arthritis (JIA) or also known as STILL's disease, stupidly searched and searched those information in webs and with hopeful minds to find good news. Being a mom of a precious daughter whose childhood is fighting with JIA (Juvenile Idiopathic Arthritis) is not something any mom can ever imagine or wish for. Within months, I suddenly became an expert in rheumatologist by force or by love. Not knowing what to expect in coming months, what kind of side effects she may have to suffer because of strong and high dosage of drugs, is there a cure for this auto immune disorder or disease, has there been any kids who outgrows this disease and completely cure, these are answers I want to find out more. Not from the doctor's mouth but from those people who have gone through and survive and now are living healthily like any other normal person, got boyfriend, friends, getting married, having kids and of course off drugs and into remission and it never flares up again. These are my hopes. That there is a hope, hope in the medical technology and hope in healing miracles. I decided to blog yesterday............ There are times I feel lonely, I feel people surround me are ignorant and they don't know about how serious this disease can be. To be honest, they do not know because the disease is uncommon and rare. They do not know how nervous I am whenever I hear Bethanie is having fever again. Is it due to infections caused by virus or bacteria or is it because the medicine is no longer effective? I fret........but I want to be consciously hopeful and positive. I have read many research reports about this disease or reports about patients. I typed key words in google search, words like: JIA, Juvenile Idiopathic Arthritis, Remission, healing, side effect of methotrexate, biologic drugs and on and on. Read all of them, move to page 2, page 3, etc.Then, I chanced upon a blog, "JIA Mom's blog". The latest update of her blog is with the title "WE ARE OFFICIALLY PRN (AKA KICKED OUT)". It was very uplifting reading and knowing someone out there who went through thin and thick since 3 years old till 17 years old and she is now off everything. That made me to be determined to start writing and blogging my precious daughter Bethanie's journey fighting with Systemic JIA. As a believer, I received this word: "Faith is not believing God can, it is knowing that He will!" I trust and believe Bethanie shall be off the medicine and soon she will live life to her fullest without any side effect and like any other teenage girl, jumping and running beautifully, active and smart, cheeky and laughing, joking around and be Jesus' girl who there to glorify His goodness in her life. I foresee that is happening in her life and we declare it's good and God makes all together for her good. Amen. Ps. I have another blog which writes about her only since she was baby and till I stopped writing. http://bebeth-low.blogspot.sg/